ME/CFS Awareness
Well, It is International ME Awareness Day 2009 on May 12th,

AND also the first anniversary of my blog!

It has been quite a year for me, health-wise, but you can read about that in previous posts…

ME/CFS Awareness

Many people are making it into ME Awareness Week and even ME Awareness MONTH, so i thought, why not do a few blog posts throughout the month on various aspects of this illness, to do my bit to spread some very important information and awareness about ME.

ME/CFS Awareness

I know, i know, there are hundreds of illness out there and no-one can know all about them all, so what is the point? Well, if you read the blue ribbon badges running through this post, you may get a few reasons. ME has been getting a raw deal: it is misrepresented by the media, and (deliberately in some cases it seems) misunderstood by the medical profession, and given next to no funding by the government into its cause or into treatments – despite the large number of people it affects and how severely. We are offered nothing except coping and “management” techniques – most of them really make little difference to our experience at all.

Just by reading this and understanding that it is not “all in the head” and not just about “liking to lie in bed all day” and that so much more could be done and needs to be done to give people with ME (pwME) an equivalent level of care and credibility to other equivalently serious diseases; you are helping to change general opinion about ME.

The more people that know what it is like, and can challenge people who laugh about pwME in the pub (they do – i have heard them) and who call it “Yuppie Flu” (as if we would get up and work if we needed money badly enough); the less the powers that be will be able to plead ignorance and ignore the facts – we need to turn the tide… AND, next time you meet someone with ME, or someone you know becomes ill with it, you will know enough to make them feel less isolated and that there is no support or understanding out there for them.

ME/CFS Awareness

I will post links to my individual posts here so they are kind of organised ( i will update this as i add new posts)…

  1. The first one is my exploration of all my Symptoms, to try to show that ME is not just about feeling tired, there is a LOT more to it than that.
  2. I then did a second post to follow this up, about the Impact of those symptoms. on my ability to function/live life, and also the Things that people say to me about my illness
  3. Then there is: You look well!
  4. (maybe more to come!)

If you want to read what other pwME are writing about, and to find lots of information about ME, go to http://meaware.wordpress.com where RachelCreative has been working hard, creating these badges and the site as a hub for all of us who are “Blogging for ME Awareness!”

We have all put in a lot of effort and appreciate you coming to take a look 🙂

 

ME/CFS AwarenessME/CFS AwarenessME/CFS Awareness

So, feel free to have a read, and if you have learnt anything, or were surprised by anything i have written, let me know! I am really interested to know what people who do not have ME know about it, what messages about it they have picked up along the way, and if i, or any other blogger for ME Awareness has changed/challenged any of that, or if you already had a pretty good idea already…

Also see this great & imaginative campaign to raise One Million Pounds for ME research this year: http://justfourquid.com/ Let’s do it!


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