This morning i went to the doctors – it was a bit early for me – my taxi came at half past nine. My stomach was a bit upset and i felt a bit weak before i set off, but was ok. When i got there i sat down while the queue for reception went down, then got up and told them i was there and sat down over by the wall (the chairs are really unsupportive and the ones against the wall are best as you can rest your head against the wall, but it does involve leaning quite far back, which is not good for POTS or my back, but better than supporting myself). Very quickly i felt faint and my heart was beating really fast and i was over heating, so luckily no-one was sitting near me so i lay down across the seats. after a while this helped and my heart calmed down a bit. i sat up after about ten minutes as i thought if my turn comes it will take too long to go from lying to standing as i will be very dizzy so i thought i would get used to sitting in the meantime…

Sitting up was hard and i had to haul myself up, and then got even hotter. A lady across the waiting room told the nurse i was in distress and she came and sat with me (was amazed at the heat radiating from me!) and gave me two glasses of cold water and that helped. I thought it probably looked like i was having a panic attack so i explained that i have ME and POTS (and briefly what that was). She was very nice. She then had to help me along the corridor to the doctor’s room. The doctor helped me back along and rang my taxi home and the taxi driver was really nice to me.

I feel a bit better now, but still very weak/lightheaded and my lower legs are very heavy/achey.

I cannot wiat for my appointment with the POTS specialist on wednesday as this is just demonstrating how much this affects my life. The last three times i have been to the doctors this has happened, i have had to ask for water, have felt dizzy and have really wanted to lie down (but this time i had no choice, last time i got to lie down anyway a bit as was having blood test). I think maybe the time of day must affect this as i have been other places and not had such a bad effect although i do feel symptoms most of the time… It has happened when out with the dog, where i have had to sit/lie down outside, but i am not able to walk her really at all now so that avoids that situation… i really hope they can give me something to manage this as i feel it is responsible for much of the worsening of my condition over the last year or two…

Finger’s crossed…

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