Yesterday i had a good appointment with my specialist and he is writing me a report which will hopefully be thorough and supportive of my DLA claim and make it worth going to the appeal tribunal… he asked to see the DWP medical report in order to criticise it and correct any incorrect assumptions, so that is looking promising.
Then, this morning the tribunal papers came through in the post, so i have another little form to send back in the next few days, if i want to continue.
I am getting quite concerned now that it is getting closer and more real, that i have not got representation. I have been reading other people’s experiences, talking to people who know about these things, and the consensus seems to be that without representation it is a nightmare and they can rip your argument/statements to shreds in seconds… i was told by Welfare Right Service when they said they could not take my case on, that the tribunal panel will go easier on me because i am representing myself, but i am not convinced. Either i meet the criteria or i don’t, but the thought of having to be coherent and consistent for 45 mins to one hour about details of my condition, what i am capable of, what i can’t do etc, particularly with a fluctuating condition as mine, fills me with horror. Particularly after the experience of the DWP medical i had, where i just felt so ill from the effort and stress of going that i could hardly walk/speak or think clearly and it was so traumatic that i spent the next 8 days largly in bed recovering… the tribunal is certainly a more stressful thing and i think i need help.
I have emailed the benefits adviser who helped me with the form to ask if there is any chance Welfare Rights will change their minds, now that i have more evidence from the specialist, and where else to find a representative if not. Of course i will have to find these for myself, but no harm in asking. I think i can ask the Citizen’s Advice Bureau, and i think you can even take a solicitor, although i would have to pay for that i imagine…
So, still lots to sort out for DLA, and no sign of it being over any time soon! It would be nice to have it done before Christmas, as it has been hanging over me for so long.




6 comments
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October 11, 2008 at 7:58 am
cusp
Don’t know if this might help: do you knwo about DIAL. They will help you complete forms and often represent you or offer an advocate for things like Tribunals.
Have a look here http://www.dialuk.info/about.asp
and see if you can find a centre near you.
After my recent 2 hour ‘interview’ with ‘medical expert’ from the PHI company I know only to well how that sense of dread and looming feels
October 11, 2008 at 8:06 am
cusp
sorry — me again. Meant to ask if you know about this as well:
http://www.benefitsandwork.co.uk/content/category/11/17/43/
October 11, 2008 at 11:17 am
ashysheela
thanks cusp. i had heard of DIAL and had it my mind to seek them out, but you have made that easier! Yes also to benefits and work, i saved all their guides while i was a member some time ago so i am referring to them too.
I have had 2 visits from HPI “medical experts” myself, not pleasant! So nice to be categorised as having a mental health issue as that is how they see ME/CFS… i hope they are leaving you alone now since the visit? Mine used to ring me all the time and i found it quite distressing, but fingers crossed they stay quiet, as they have been recently…
October 11, 2008 at 4:17 pm
rachelcreative
Perhaps the welfare people will reconsider now you have a specialists backing. Any possible getting that POTS diagnosis in writing too.
It sucks it really does that you have to go through this.
October 11, 2008 at 4:46 pm
Rachel M
I’m also hoping that welfare people will change their mind and support you.
Having specialist back up & support is very positive thing, I think.
Good luck. I wish I could help you…
October 12, 2008 at 5:07 pm
ashysheela
Yes Mrs Creative, the doc is including the POTS thing in his report i hope, i certainly made it clear how important i thought it was and he seemed to agree. We can only wait and see what he writes – CROSS EVERYTHING!!! As for representation, i think i am going to have to bribe someone at thi point… what do i have to offer tho…!!
Thanks Rachel M, you do help me – it is nice to know you are reading and to get supportive comments too