Well, bad news is that the benefits service who could have helped me have refused to take my case on for appeal… so if i want to carry on to appeal i have to go it alone… I am not sure what they would have done for me, but they would have come with me and helped me prepare for it, and possibly “represented” me in some way. Anyway going alone (with my partner) is a bit daunting. The reason they are not taking me on is that I do not have good medical support/evidence, and as my case stands it does not look very strong, as without medical backup they (DWP) have every reason not to believe me it seems. The service have limited resources so can’t take on someone in this situation. I have an appointment with my specialist in october so i am hoping that he will be very supportive so that i have a basis on which to continue to appeal (and to challenge what has already been said about me), but i am having real second thoughts about continuing. It is stressing me out! I know that if i don’t i will always be thinking, “what if i had carried on…” but i am left doubting how strong a case i have and my chances of success after this latest development, and it is a lot to put myself through for nothing. I suppose i will just carry on until i have seen the specialist and give up if he is not overly enthusiastic/supportive/articulate but i am so sick of all this now. I could rant on and on about it but i really can’t be bothered to waste my breath today!
Tags
acceptance
aches
alternative therapy
appeal
art
benefits
birds
CBT
CFS
cfs/me
D-Ribose
diet
Disability
Disability Living Allowance
DLA
DWP
energy
feeling good
freedom
friends
From Fatigued To Fantastic
fun
going out
headaches
health
holiday
hope
HPI
IBS
illness
massage
ME
ME/CFS
medication
money
muscles
pain
POTS
reflexology
Scarborough
shopping
stress
sunshine
treatment
walking
Categories
Recent Posts
Pages
Archives
Blogroll
- A Hummingbird’s Guide to ME
- and from these ashes…
- Blue Coffee Mug
- body of work
- ChronicallyME
- Diary of a Goldfish
- Dr Speedy – NICE Guidelines Blog
- Energy Sparks
- Greenwords
- l’Ombre de mon Ombre
- Liverpool leftovers
- Parkview 616
- Reading the Signs
- Reviving the Broken Marionette
- Screw Bronze!
- The Beauty Offensive
- Through myself and back again
- velo-gubbed-legs




3 comments
Comments feed for this article
August 17, 2008 at 7:14 pm
Rachel M
I wish I could send my caring doctor to you.
It is a tough decision to make, isn’t it? How much more stress can you cope and what outcome is possible if you keep trying?
It is really not fair.
When I’m not sure about anything, I try not to make any decision until I can see things clearly.
Keep hanging in there.
August 18, 2008 at 10:16 am
ashysheela
I think a dose of Dr TL would really help! I think you are right about waiting to see things more clearly… That is the decision i have some to as well, move on one step at a time and keep options open until i feel i really can’t/don’t want to continue as at the moment i can’t see what is for the best… going to try to get some advice/talk to someone about it today…
August 18, 2008 at 11:21 am
rachelcreative
Seems like the sensible thing to do is to see if your specialist will write a supporting letter when you see them in October and if the timing is right for the appeal (and/or if you can delay to see if you can get the specialist on board).
If you can submit that supporting medical evidence then pressing on with the appeal seems the way to go. The other thing would be to see if you can get a GP recommended in your area who is ME friendly?
You have to balance how much the fight is worth – it’s not just about the money it’s about not jeopordising what health you do have.
Very difficult. Not fair.